the migraineuse in winter

What I’m gradually coming to grasp is what it means that I have a migraine brain. In a sense I can feel it coming on in the form of warping of my personality. For the last few days I’ve been beset by obsessive thinking, a tingling feeling along the back of my head, and wide swings in mood. It’s sort of like PMS, writ large.

Much of this obsessive thinking took the form of a powerful crush on the geothermal man. He was here again on Wednesday with another guy, trying to figure out our insane snarl of duct work. I was suddenly struck by his remarkable tallness, darkness, and handsomeness. School girl fantasies set in, and took hold for not one but two solid days. His inky dark eyes! The way he explains the cold air return problem!

It’s a bodice ripper that just writes itself: the lonely housewife who wants more energy efficient heating and cooling… the studly geothermal man who can provide it….

I chuckle about it now, but yesterday it seemed pretty plausible.

This morning I woke up with one ear ringing so loudly I couldn’t believe it was actually inside my head. (The test: close the ear and if it’s still just as loud, then you know.) Much too soon after I woke up, Elias jumped on me and carelessly shoved a plastic thing up my nose. (It was a rip cord type thing for a small space ship, but I don’t know the technical term for it.) I scolded him mildly for this, but a scant two minutes later he waved it in my face again and nearly poked me in the eye. At that point I lost it, yelled at him fiercely, and tossed the thing across off the bed. He screamed, which only made me feel more churlish. He wasn’t trying to be bad; he was just oblivious, and my yelling hurt and startled him.

At that point I noticed that everything was too loud and too bright and basically it was going to be rough day. Everything and everyone in the house was driving me crazy. I wanted and needed to go for a walk, out in the woods, with fresh air. Riding the stationary bike in a loud chaotic gym wouldn’t do it. But the problem was that I am scared to take a walk by myself. I could fall so easily, and then I’d be alone out there. This problem made me feel trapped and defeated.

I tried to explain it to Ben and started crying uncontrollably, something I really don’t do often! Ben reassured me that I can and should take a walk, and that I will not fall. I pulled on my horrible support stockings, dried my tears, put a phone in my pocket, and set out.

I drove to a nearby nature preserve. The rain had let up and it was surprisingly warm out, but the path was both wet and icy. I walked as far as a creek and while standing there and watching it rage like Niagara Falls, I realized that I was really going to get slammed with migraine. The movement of the water was intolerable to me, and the noise. I walked slowly back to the car, feeling weak, at risk of falling, and demoralized: my sanity saver didn’t work. I came home sure that a major migraine was about to hit.

I have a series of vitamins that I take at moments like these– magnesium and b6 mostly. I took as much as I had on hand (not enough) and went to bed. The kids jumped on me, and then Ben very kindly took them away. Isaac had swimming class anyway, and brought Elias along to watch. I lay there extremely grateful for the quiet, but wishing the trees outside the windows would stop swaying. The humming of the air bothered me. Little sparkles of pain moved around my head. Finally I fell asleep, and dreamed of falling down in a crowded room.

When I woke up I felt better though, and hungry. After a while the kids came to jump on me again, and I felt good enough to get up and make myself something to eat. I’m okay now, albeit drained. It’s pouring rain and the low areas are flooding. The creek is powerful enough to carry away large tree limbs, and more and more rain is on the way. The thaw has revealed all sorts of unattractive things around the yard. We have two gutters that have been pulled half off by ice, which gives the house a derelict appearance.

It’s just a hideous time of year, March. Everything is cold, gray, and sodden. It can’t be long now, though, before some hopeful little crocus pops up beside the terrace. The trees are already starting to look as if a red mist has settled over them. It’s almost impossible to see, but it has to mean there are buds.

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Panhandle Hook

Our snow storm du jour is called a “panhandle hook.” Apparently I have my friends and family in Texas to thank for this one– it formed there and then came up here, getting bigger along the way. Right now outside the window it looks like maybe Northern Manitoba or something like that. There are lots of (windswept, snow-laden) trees, so I can’t say it’s like the polar ice cap.

So, that means I’m ensconced at home with two fairly wild little beasts. It tends to go in waves with them. They play calmly for a while, and then a fight breaks out. Chaos ensues. Time-outs may be given, as well as threats to throw them both out in the blizzard. I might have them run six or eight laps around the house. Then all calms down again for a while. Most recently, maybe twenty minutes ago, Elias got in big trouble for throwing a knife in the kitchen. I think he was aiming at Isaac, and it was only a butter knife, but still, when it came whizzing by my head I did react quite strongly. I shrieked at him (he had only two minutes earlier thrown a block, too, by the way), even swatted his butt in one firm swat, then dragged him off to sit in his red chair. He screamed, and tried a little TaeKwonDo en route, too, but he’s only an orange belt. We’ve since made up and he’s gone on with his day and I with mine.

Last weekend Ben took them both out to NYC for a guy weekend. This was terrific for me. I’ve been dragging along with a sinus infection for ages, and finally went in and got antibiotics for it. Much-needed rest would surely help. However my stated goal of watching limitless episodes of Mad Men and knitting Elias’s black ninja sweater was marred by bouts of unexplained serious dizziness. Like bad-old-days, can’t-walk-a-straight-line type dizziness. I actually started thinking, Hm, if I fall here and cut my head, and I’m all alone all weekend, I could bleed to death before anyone finds me. This line of thinking stressed me out, and I took to carrying my phone in my pocket with me at all times. That way, if I was still conscious, but had a broken limb, I could at least call for help.

In the midst of this a blizzard struck out of the blue. The weather people totally missed this one, too. They claimed it was going to be like an inch of snow– instead it was a layer of ice and then more like 8 inches. This wouldn’t have mattered except that I had to plow all by myself. This is really Ben’s area of expertise– I only use the lawn tractor rarely when I need to carry something around the (grassy) yard. I’ve only plowed one other time, and then I had Elias on my lap offering advice and moral support. So– I did my best, consulting with Ben on the phone, out there in the dark and the blinding snow. I got it cleared enough that our neighbors and I could get out if need be.

Maybe this is why most my precious three days of rest did not instantly restore me to greatness. I spoke to my mom about this and she said that two weeks was probably more like it. Anyway, when Ben got back Tuesday night, I was doing my best to not harsh his mellow with my problems. However he went out to plow (properly!) and then got his car stuck, which exasperated him greatly. At that point, my hearing in my left ear went out seriously — just like the bad, bad old days, and it really started to ring. I began to worry that a real vertigo attack was forming on the horizon.

Things did not improve Wednesday morning when I woke up too dizzy to do anything whatsoever. I could not drive the kids to school, nor drive all the other kids I was supposed to drive to skiing. (I’ve tried having a vertigo attack behind the wheel and it is an experience I never want to repeat.) Ben had to go to work, so we all just stayed home. It went fine, because the kids were fairly exhausted from walking all over Manhattan all weekend. But I was so demoralized! Back at square one, so it seemed, back to the dreaded June of 2009! I set up an appt with Vince for that evening, which Ben could drive me to, to see if there was anything he could do to help.

And there was– he tested me with these goggles I haven’t seen in some time. They make it so one eye is watched with a camera and projected on to a large TV in the room. They can leave one eye exposed or put the patient into total darkness. Then they tip you this way and that to see what happens. If you have ear damage, the eyes “beat” towards the damaged ear. (Picture the eyes spinning on a dizzy cartoon character– apparently this has some basis in fact.) At one point they (Vince and his helper) were giving me  break from this unfun process and let me look at my eye on the screen. My pupil was visibly dilating and undilating with no change in light. It was so weird to watch! Apparently this is a clear migraine symptom, which helped with the diagnosis.

They also took this huge thing and vibrated my neck, the back of my head, my shoulders and so on, which made me feel instantly like vomiting. Shortly they found a muscle that was all messed up and, combined with migraine, actually causing the problem! My ears, thank god, were fine. Also, thank god, they were able to help me a lot by massaging my neck in a very specific way. They covered my neck with tape, all along each muscle, which has been known to help, and sent me a away feeling much, much better.

Meanwhile my neurologist prescribed a round of steroids to deflate whatever is swollen, which I started yesterday. So the future is bright. It means to me that in the proceeding nearly two years, I’ve developed a lot of skills and contacts and resources to deal with this sort of thing.

And now, another day at home with the kids. (Ben plowed before he left, but you wouldn’t know it to look out there.) Isaac is somewhat sick with a sore throat, so it’s just as well. They’re now having a Phineas and Ferb film festival (I appreciate the song, “He’s a semi-aquatic, egg-laying mammal of action! Perry the Platypus!”) Maybe later I can lure them to join me in making banana muffins.

All this normalcy has a special glow of goodness after a few really dizzy days to remind me how good-good-good it is to be non-dizzy.

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Geothermal up and running

A scant four hours after I posted my lament the other day, the whole thing was over. The outside team packed up their tent. They filled up the trench, drove the excavator on to a flat bed truck and took it away. The huge pump with a water tank, left. Cars and trucks disappeared. All the pink flags all over the yard were collected. The inside guys came upstairs and set the thermostat for heat and humidity. And then, by maybe 6:00 that evening, everyone was gone.

I went down to the basement and found that all our detritus was back where it had been in the first place. The large chunks of metal and all the tools were gone. All that remained were the two new hot water tanks, brimming with wonderful hot water, and the geothermal unit itself, connected to the outside world with giant serious looking hoses.

Shortly thereafter, the heat took hold in the house. It began to feel like a warm blanket. The heat is, in fact, nicer. How can heat be nicer? I don’t know. On of the references I talked to beforehand told me this: “The heat is nicer,” she said. “I love it. It’s like a warm blanket wrapped around you.” I think it’s the humidity. After months in an arid desert environment, getting up to 30, or even 40 percent humidity feels incredibly soothing and nice. It feels nice to breath it.

In sum, I love the geothermal. It’s only been a few days, but at this point I say it’s definitely a boon, not a boondoggle.  (Phew!!!)

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The Battle Hymn of the Sloth Mother

With all the uproar about Amy Chua’s “Tiger Mother” book, I’ve been thinking about how totally unlike her I am. Probably to a fault. Making them practice piano for four hours a day? Telling them a homemade birthday card for me is “garbage” and that I expected more effort? Insisting that an A- isn’t good enough? This is all utterly foreign to me. I never actually demand things out of my kids.

My approach has always been to assist them if they’re interested in something, like, say octopuses or volcanoes. Give them access to information they crave. I will do chemistry experiments with them, help them make a habitat for a new toad, or pour candles, or build a complicated fort out of hot water heater boxes. Expose them to things. We take classes, for instance. Isaac used to do baby music and then Suzuki piano and Dalcroze dance and movement. But when Isaac hated piano, I let him quit. Later on we tried cello, which again he hated, and after some angst about it I let him quit. We got started in TaeKwondo, though, four years ago, and that one stuck. He’s about to test for his ChoDanBo, temporary black belt, next week.

I got both the kids into gymnastics, which they are crazy about. Isaac is big on swimming. Elias is taking an interest in skating, and it looks like Ben will finally have a son to follow in his blade tracks on the ice. Isaac did eight weeks of horseback riding last fall and will again in the spring. Right now he’s downhill skiing on Wednesdays. Elias wants to do violin very badly, but first he has to be able to sit still for more than three seconds, so that one is still pending. His potential teacher and I have met a couple times and we’re looking at trying again in June.

As for school work, we do struggle with Isaac over his one worksheet a week. You’d think this would be no big deal, but Isaac acts like his fingernails are being pulled out when he has to learn fifteen spelling words at home. All the rest of his work is at school, which is  part of the Montessori philosophy. They don’t even have grades. His report cards tend to say the same thing– he’s very bright, but totally undisciplined, unmotivated, and much too squirrely. It concerns me a little bit, but not that much. He’s 8 years old for god sakes. How much self-discipline is he supposed to have?

I let them play too many video games and watch too many DVDs. Screen time is the biggest problem with my parenting technique I think, but it’s a natural outcome of being physically impaired and home with two little maniacs much of the time. I have to lie down, and one of the only ways they are quiet and non-destructive is when they are stationed in front of a flickering image. I do feel guilty about the little brains rotting on the their stems, but then I try to reassure myself that they really do have a lot of richness in all other areas of their lives. How bad is it for them to sit down and chill and veg when they’ve been out and about all day, going from school to the library to TaeKwonDo? Not that bad, I’d say.

I think Amy Chua would say that I personally am the problem with American children today. I expect little while offering much.  I’m always there, cheering them on from the sidelines. I drive them around and manage their equipment and wardrobe. It seems better to me this way. I would never want to make them feel pressured or inadequate. Does this mean that they won’t cure cancer or be the first to step foot on Mars? I don’t know. If they want to do those things, I’ll help and encourage. But it has to be their desire, their goal, their interest that drives them to do it.

What if their goal is to get to level five of Star Wars the Clone Wars: Search for R2D2, rather than to cure cancer? That would be pretty depressing, wouldn’t it?  That would be why our country falls behind in the global economy. Unless of course they develop a way to shoot cancer cells with their Wii remotes, or something like that. Which they well might. Yeah, that sounds good. Let’s assume that there is a value to what they choose to do on their own.

This summer I’m getting serious about our new garden. It’s a 30’x55′ plot that Ben fenced in, with great difficulty, last summer. The kids and I have been reading seed catalogs and choosing what to grow. Each boy is going to get his own plot within the garden. I was making a big scale plan of this on graph paper last weekend, and Isaac got involved. Ultimately he got colored pencils to indicate where he wanted black and gold raspberries, and adjusted the lay-out of his plot to suit his liking. He’s going to have “Minnesota Midget” melons, for instance. Elias is going to have caterpillar plants (you can’t eat them, but the pods look like caterpillars and you can hide them in someone’s salad). I’m very happy to do a project with them that includes the part where I get to supervise from a hammock while sipping lemonade.

I’m no tiger mother. My battle hymn is “Good Job!” and the flags I march under both show thumbs up. Is this bad? I don’t know. Maybe my boys will both grow up to be couch potatoes who sit in the basement all day doing nothing. I hope not. I sort of wish my mascot were a tiger, but the reality is that it’s a three-toed sloth.

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Geothermal: boon or boondoggle?

It’s been sort of a tough week in these parts. The process of installing geothermal heating and cooling has unfortunately coincided with the storm of the century! (I think this is our fifth one so far, and it’s only 2011.) Also, I just didn’t realize how incredibly disruptive and complicated this installation process would be. Combine that with two snow days off of school and two wild children to entertain 24/7, and basically we’ve been incarcerated in a freezing cold, loud, chaotic environment. And it’s February, the longest short month.

This morning we woke up to a decided nip in the air. We are at a difficult point in the process– yesterday they carved our old furnace up into chunks and hauled it away. Then they hooked up the new gizmo ( furnace isn’t the right name for it), but the geothermal part isn’t ready yet, so it’s running on electric auxiliary power.  Turns out that even of that we only have half, as they are also using it to keep their machines from freezing outside in their tent.  (Before we started this project they assured me that working in the winter would be fine and that we’d have no disruption in heat. But apparently it depends on what you mean by “disruption.”) The bottom line is that this morning it was 56 degrees inside and 7 degrees outside and no one wanted to get out of bed. Every heating vent in the house is briskly blowing cold air.

I felt very like my pioneer forebears, kneeling before our 1831 fireplace and trying to coax a fire out of newspaper and large logs (i.e., no kindling to speak of). I was struggling with this not very successful process, when Elias appeared beside me, whispering “I have croup again” in a horrible strangled voice that confirmed his self-diagnosis. I gave him several medications in a row and got him stable. Then went back to making a fire and brewing hot cocoa in order to lure Isaac from his slumbers.

I really could use fingerless gloves to key with at this moment.

Is this all a big, BIG mistake?

Why are we doing this?

Last summer, our air conditioner died and our furnace has been on the brink of death since we bought the house. Indeed, it’s lasted longer than we expected. So faced with the prospect of losing the furnace mid-winter, and not having any good options, we started trying to figure out what to do.

I’ll give you the real numbers so you can see the process of deliberation. Replacing both furnace and air conditioning came in at around $10-14,000. There’s a $1500 tax credit– if you go with higher efficiency models, on the higher end of the price range. So let’s put that route at roughly $12,000 after the tax credit. Then look at geothermal. The cost there is $25,000, but it also includes whole house humidity control and two new hot water tanks. (These extras are things we would’ve wanted or needed to add to a conventional system eventually probably a $1-2K expense.) BUT there’s a 30% tax credit, with no cap. So now you’re comparing $17,500 to $12,000. Then look at the fact that with geothermal you no longer pay natural gas bills to heat your home. Ours, even post-insulation, were running $2,500 a year. So now you’re looking at a 2-3 year return on investment for the difference in cost, in a house you intend to live in for the next 30 plus. I called our accountant and ran through all this with him. He gave it the thumbs up. And remember, doing nothing was not an option. And we have lots of land and already have the duct work, two key things that geothermal requires. So geothermal made sense to both of us.

I tried to research it thoroughly– I read Consumer Reports, read articles online, consulted with my Uncle John. Everything was pro-geothermal as a sound long-term decision. I tried to get different bids, but here this is a problem. There are not many companies doing just residential geothermal. There are lots of HVAC companies out there who have tacked on geothermal because people want it, but actually have no idea what they’re doing. Ben got in touch with one company through a colleague of his, and that guy came out and proved to be much less clear on things than I was. We got into a discussion about closed loop versus open loop systems and honestly he was clueless. Obviously he intended to act as a contractor and farm the whole project out to someone else, including a water well driller.

When I found a company that looked like the right one, who did only residential geothermal and had all their own crew and specialized equipment, I got in touch with the BBB. This company has an A rating with them. I called references of people who had had it done in the last year, by this company, and whose houses are roughly like ours. They raved about how great it was to have geothermal and how successful it’s been and how much they loved the company. The man we met with was very nice, competent and professional, and his long black pony tail and diamond stud earrings actually endeared him to me more. He seemed like someone I could work with and could trust.

Then, at some point after we signed the contract but before the work began, Ben and the kids were out for a nature walk and ran into a random guy on the path. They got to talking and before you know the guy had eviscerated the whole concept of geothermal and gotten Ben all in a tizzy. The guy said that he personally installed it in buildings in Charleston, SC, and it was a total mess. “It’s a line item for millionaires,” he declared. “And it won’t work– you just won’t ever be as warm or cool as you want!” Ben came home in an apoplectic state and launched a shot across my bow of how my liberal views and political correctness led us astray and how it’s all going to cost a mint, and not work, and it’s all my fault. AND I make him eat organic food against his will! Or words to that effect. At which point I mentioned that no one put a gun to his head when signed that contract and handed over the deposit. A spirited debate ensued. I may have used some salty language. I expressed an interest in punching this random guy in the woods, and punching Ben for listening to him. Then we made up and went on with dinner in a peaceful fashion. I like to think I won, but it remains to be seen.

So, fast forward to now. We are at grave risk of Ben being right, which would be a horrible state of affairs! We are cold. We have equipment all over the place and heaps of snow and mud. We have loud projects going on in the basement, and every part of the basement is taken up with tools and large chunks of metal along with all the usual laundry and boxes and summer furniture. Yesterday there was an alarming moment when they were boring through the basement wall to connect the system. This drill was coming from maybe 30 yards away and hitting the wall underground at maybe 8 feet deep. (The boys and I came down to watch the show.) As they did this boneshattering work, a sudden pool of water appeared at the far corner of the room– a leak in the dyke it looked like. And then when they punched through the wall at last, a huge gush of mud and water came pouring into the room. At that point I went back upstairs, shaken to the core, thinking they’ve destabilized the foundation: our entire house is going to fall into a sink hole of mud– and then freeze.

As it stands now, they’ve neatly repaired and rebricked the hole downstairs.  They are very calm and reassuring in their portrayal of the process. The hot water portion of the system is working great. But the cold air is still blasting from every portal. Apparently today, or at the very latest tomorrow, they will get the whole thing done. They assured me and assured me that it will be warm in here soon. It’s like when there’s a fly ball you look to the outfielder to see if it’s in or out of the park. I look at these people and they inspire confidence.  I think this is all going to be a success in the end.

Still, prayers would be welcome.

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Regret

“For of all sad words of tongue or pen, the saddest are these: ‘It might have been.'” — John Greenleaf Whittier

Perhaps it is just January, and mathematically the saddest time of the year, maybe because I’m home with two sick boys today, but lately my macro-regret, my ur-regret, has been relentlessly dogging me. Is this a mid-life crisis? I am 44, after all. … I’ve spent almost ten years ensconced in domesticity. Happily so, most of the time. But lately, there’s a certain event that keeps surfacing in my mind. I sit and give it time to be there, think it through, and move beyond it. Then it comes back again. And again. Last night I dreamed about it, and I woke up in already depressed. I made my choice, I tell myself. At the time it seemed the right choice. But– what if I had turned the other way at those crossroads?

It’s almost like a dream in itself. For years I completely forgot about it, so that I when it came back to me I actually doubted that it really happened. But it did.

One day in New York, it must have been 1995, my mentor-lady called me. She was sort of a flake and did some strange things, but she was very well-placed in the magazine world and has several well-regarded books to her credit. I had worked for her as an assistant, helping her organize her insane tiny little office on 5th Avenue above Saks. I ran errands for her and created a workable filing system out of utter chaos. I convinced her to keep all her papers and drafts because someone would want them one day, and indeed that has proved true. Then she got me my job working for Diana Trilling, which was a great experience for me.

Anyway, one day she called me. I was standing in my tiny New York kitchen, I remember that part well. She said that there was an editorial assistant position available at The New Yorker. She said she was good friends with the person hiring, and that she had told him all about me, and that in effect… the job was mine for the taking.

I said no.

My logic, if you can call it that, was two-fold: 1) most importantly, I was about to marry Ben and move to Ohio. My life was on that path and I couldn’t really envision it differently. If I took the job, I would need to stay in New York and Ben was moving to Ohio to work for his family business. So if I had taken it, would we have gotten married and lived apart for a year or two or three? Would we have gotten married at all? Ben and Ohio were a package deal, and I took them both. And 2) I had some totally misguided idea that if I took the job I would appear to the New Yorker in the “wrong category.” I wanted to present myself to them in all my glory as a writer, not as a low-level editor who also wrote a bit on the side, in between getting them their coffee.

I told my mentor-lady this, and she was dumbfounded. “Catherine, that’s crazy,” she said. I told a good writing friend this and she too was dumbfounded. “Catherine, that’s crazy,” she also said. I didn’t listen to them. I thought I knew what I was doing.

At the time I was very arrogant and had some actual data to support my delusions of grandeur. I had interest from one of the biggest agents in New York. I personally knew the editor of the New York Times Book Review, who had read my manuscript and loved it. I had worked for Diana Trilling for two years, typing up correspondence with Norman Mailer (even at 88, Diana was still girlishly flattered that Mailer had called her “a smart cunt”), Calvin Trillin, Leon Wieseltier, Andrew Wylie, Christopher Lehmann-Haupt, and many other of these important figures in the literary world. I had taken classes at Columbia with Adam Gopnik, Alec Wilkinson, and David Remnick himself (who now is the editor of the New Yorker). They all liked my writing a lot and encouraged me. I was writing little reviews for the NYTBR myself. All in all it seemed that I was effectively launched, and that I didn’t need to work for the New Yorker to accomplish my goals.

At that time, too, the internet was very young but its promise could already be felt. It seemed to me that my physical location wouldn’t matter– I could just e-mail people in New York back and forth. Cleveland didn’t seem all that far away. Ben would work full-time and make enough money that I wouldn’t need to work, and I could write full-time. In a few months, my manuscript would be done, Big Agent would handle it, and it would be excerpted in the New Yorker anyway!

So I thought. But none of this– none– went like I had planned.

And now, as a 44-year-old Ohio housewife with some very dusty clips from the mid-90s and little else to my credit, it seems surreal, almost shocking, that I turned that opportunity down. I hate being such a living cliche– “I coulda been a contenda!” What would’ve happened if I had said okay? For one thing, it’s very possible that I could simply have not gotten the job after all. I honestly wish that that had happened instead, because then at least I’d know. Or, maybe I could’ve stayed in NYC for a year, worked there, and then managed to set up a long-distance job for them, shipping manuscripts back and forth or just e-mailing them. And if I had access, maybe I could have shown them a piece or two and gotten someone to read it. It’s all about access, which now is completely vanished.

But then I look at my boys– one of whom is shirtless and asleep beside me– and I think, if I had taken the job would I have them at all? Would they exist? And then it all folds back on itself. I could not imagine, or want, a life without them in it. If I had stayed in NYC, and my relationship with Ben had fallen apart, what then? Would I now have a fancy career and nothing else? Would I ever ever have wanted that?

It’s an unknowable unknown.

I remember before we were married, I was dreaming aloud with my mother about what it would be like in Ohio. She said, “You’ll have these apple-cheeked children, and you’ll make bread…” And I said, “I’ll have a big garden and I’ll have a big pot of soup on the stove, and they’ll come in from playing to eat some…” and on like that. It was so bucolic and so blissful that it prompted my step-father to chime in sardonically, “I also hear they have unicorns in Ohio…” We laughed, but my life really is a lot like we imagined. It’s not perfect, of course, but it really is wonderful.

Then sometimes I think of my friend Andrew King, who worked and slaved in New York for almost 15 years after we graduated from Columbia, lost and gained countless agents, drafted and redrafted six or seven novels, and always infinitely hopeful and tenacious, always on the cusp of greatness. Until he committed suicide in 2009, yet another unknown famous writer who never made it to the big time.

I think in practical terms the point of all this is: I have to start writing again. That’s the only way to cure this regret. I have to start seriously writing again. I encourage myself that maybe I have another 44 years, at least, to have a serious writing career, and that’s plenty of time. Most likely with advances in health care, I’ll live to be 110. Think of all the great, late bloomers out there! I tell myself this a lot.

Sometimes I even believe it.

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Fart Party

Would you like to have a fart party? If you haven’t been to one, it’s where the guests put their butts together, in pairs I guess, and both fart at the same time. Elias invented this concept, and invited me to come. Unfortunately I was booked solid.

(Maybe the day before the party there should be a pre-party… with gas-producing foods?) (Please no one tell Isaac about the idea of lighting farts on fire– this would combine both his interests perfectly!)

Ah, life with young boys. The mirth of farts, the louder and the stinkier, the funnier. I’m actually glad that there are two boys in the house, so they can amuse each other with these topics and I can leave the room entirely. Farts don’t really interest me at all. Indeed, I’m against them.

It’s MLK day today. I don’t know if this is a worthwhile way to honor the importance of the day… in fact I’m sure it falls short. But what I’m doing is sitting in the library (for some reason it’s open) and putzing around with some writing. I have a lot of ideas flying around in my head, and the problem is that it gets overwhelming immediately. The other problem is the lack of any sort of consistent time to sort through them. It’s not the sort of thing that can easily be rushed. In fact rushing, I’ve found, makes it worse.

I have my eyes on the wonder of time up ahead in the fall, when Elias will start full-day Kindergarten and I will have SIX HOURS A DAY. I’m sorry I’m shouting, but it’s been like… 8 years??? All I can do now is try to catch ideas as they flit by and jot them down someplace, so that one day, roughly September 1, 2011, I’ll be able to sit still and focus. We have a trial day coming up in February… Elias is going to bring lunch and stay til 3:15! What a clever boy. What a wealth of time for me!

As it is right now, I have never more than an hour or two at a time, and it’s so disjointed, with lots of driving in between. Exercise, dishes and cooking take it all up. Right now, the kids are at TaeKwonDo– there’s a party sort of thing run by the teachers, not a class. They are playing dodge ball and zombie tag and running around in a large padded room. Pizza, surprise birthday cake for some little girl there, a screening of “Despicable Me.” Really this is a lovely way for them to spend some time, vent, and get tired enough to be tame enough to bring back home. “A tired dog is a good dog.” That’s my motto. And that’s why the boys are doing TaeKwonDo twice a week, gymnastics once a week, plus either swimming or skating once a week. I pay others to tire them out because I simply can’t.

I fear pinning too much hope on the glory of September. What if I have a major relapse in dizziness, or something? Or something else happens. I’m working on the exercise plan with much difficulty. The pattern seems to be (now two weeks into it) that I can get through the exercise itself okay, but then a couple hours later I just hit a wall and feel horrible. I must lie down. In fact, I must sleep. I read on this blog called potsrecovery that the lady did exactly that. She’d get through the exercise and then come home and sleep 2-3 hours! And then could function. With her life, she was able to make that work. With mine, there just isn’t enough time and it’s very hard.

It’s kind of interesting to actually have a Real Condition that causes me to hate exercise. I always thought I just hated exercise in a general, American sense of being a couch potato. I also always thought that if I simply worked harder at it, through force of will, I could one day become Jane Fonda (so dating myself!! I mean Meagan Fox.) So many, many times in my life I’ve gone through phases of determination to make a change, and so many, many times I’ve had little progress, lots of misery, or in the most recent case, progress undone quickly. I really was in good shape in spring and summer 2009, but so hopelessly dizzy I could barely walk across the room! How useful is it to be thin and hot when you can’t even stand up to show it off? And yet, here again, for the one-millionth time, I’m digging in my heels and trying.

Vestibular Therapist Vince lauds my efforts, though, and I just have to believe that I’m on the right track. He convinced me to buy a blood pressure cuff for home, so now I’m tracking it a lot more closely. (My mother told me to buy one about 18 months ago– she was very right!) What I’ve found is that a) the tons of salt I’m ingesting is not giving me hypertension by any means, and b) when I feel somewhat bad and light-headed, my blood pressure actually is somewhat  low. I haven’t had a really bad episode since I got the thing the other day, but I’ve found that when I feel even slightly bad, it’s down to 100/70 or something like that, with my resting heart rate up to 100. I’m intrigued to find out just how low it gets, when I’m freezing cold and can’t stand up.  At my very worst, at the tilt table test, it went down to lower than the machine could read– something like 80/40.

I’m slugging salt water as we speak. Almost done with my first liter of the day, only two more to go! Yippee!

Back to get the kids from their posse of other young fart enthusiasts. Time’s up.

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POTS study, kinda, sorta

I tried for ages to get a doctor of some kind to agree to work with me on the POTS study. (If you don’t know what I’m talking about, see here.) But no. My neurologist, kind though he his, is entangled in red tape at the behemoth Cleveland Clinic. He’s also incredibly busy, and was put off by all the paper work involved. (Although to the naked eye it looked very minimal.) Ultimately after being in limbo with him for a couple months, I approached my family doctor, thinking that it would be a no brainer. She’s very pro-exercise, as doctors usually are, and works for a small practice that she herself runs. So I sent her an e-mail with a very short, direct summary of the situation, and all the attached information from the Texas people. No surprise, I got no reply, and after a week or so I called.  Again, all the doctor has to do is test me for POTS, hand me the information, and then three months later, test me again. (A ten-minute test in the office.)

But no. “The doctor says she cannot administer any treatment that is not approved by the FDA,” said the rather snippy nurse. “AND, she doesn’t communicate with patients via e-mail.”

Okay, so even if the “treatment” is just exercise, it’s not FDA approved. … ?

It seems that this is a legal hot potato, and no one, but NO ONE wants to be the person who handed me the exercise plan that caused me to drop dead or go into a coma or whatever in the middle of the gym. While watching Colbert, most likely.

So I gave up. I worked on it patiently for months, and now, I’m done. I re-read the article carefully and am now attempting to do just what everyone says not to do, that is exercise without your doctor’s supervision and blessing.

I’m just trying to muddle through, kinda, sorta, approximating what the protocol was.  It begins with 30-40 minutes 3-4 times a week of seated exercise (recumbent bike in my case, tried and true), with the goal of elevating your heart rate to 75% of maximum for 20-30 minutes each session (a little warm up and cool down is called for). For me, that works out to getting my heart rate over 130. It’s not totally unfamiliar territory. I’ve done it in the past, pre-POTS, but it’s been pretty hard. I console myself that while I don’t actually have the protocol to follow (only a summary of it that lacks any detail), I do know how to exercise, and I do know myself fairly well, and I do have trusty vestibular therapist Vince on board, and I’m checking in with him every two weeks. Just think, six months ago I was riding the recumbent bike for four minutes with two people watching me intently. Now I’m riding it, hard, for 40 minutes, and surviving pretty well.

The other parts of it are to increase daily water to 3-4 liters, and increase salt to a staggering 6-8 grams per day. Holy crap, that’s a lot of salt (like three teaspoons) for someone who can’t go near processed food! If I could eat repeatedly at McDonalds this might not be so challenging. … but as it is, I’m all about organic steamed kale. I drink my special drink– 1 EmergenC in one liter of water, combined with maybe a half teaspoon of salt– throughout the day. More– I need to chug down yet more. I feel like I’m sloshing around like a giant water balloon.

I started about a week ago and have hung in there, despite a mild stomach bug working its way through the house. The exercising uptick made all my dizziness symptoms rush right back, no doubt. I’ve been dealing with the POTS coldness (cold hands and feet and everything else due to low blood pressure). But under the “It will get worse before it gets better” theory, I’m hanging tough. Three months, that’s 12 weeks.

One down, 11 to go.

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A new year, a new blog

Welcome to my new blog, Fine Young Fauves. I will be moving the archives from my old blog here soon, and will start posting here from now on. It’s my third relocation in seven years of blogging, and I hope I’ve found my forever home.

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Grandma Jane’s funeral

My Grandma Jane died about ten days ago. It was quite sudden and also peaceful, two attributes which don’t often coincide. She was 88 and generally in blooming health. ("People in our family don't get sick," she said recently. "We just drop dead.") On her last night of life, she went to a Christmas party at her church. I met the little old ladies who were with her that night, and they told me how wonderful a time they had. They laughed and talked and told funny stories about Christmases when they were kids. They ate a nice meal, plenty of Christmas cookies, and sang carols. Grandma Jane was reluctant to leave, even when her ride wanted to go. “She was the life of the party,” they said. “She had us all in stitches.” And then, she went home, put on her pajamas, climbed into bed, got cozy, and died.

This weekend was her funeral in Houston. Through the help of a philanthropist, I was able to get there despite several logistical challenges and the outrageous cost of the flight. Both Friday and Saturday were gruelingly long days with complicated and indeed unreasonable schedules. But I found that in the company of my mother, my uncle John and my two aunts, Judy and Barb, I was inherently happy, and most of the time laughing until my sides hurt.

Not that we weren’t also quite sad about the death. At the funeral itself, we sat attentively through the Reverend’s talk. But then he sat down, and Amazing Grace started to play. Everyone in our small party began to weep. Grandma Jane lay there as if asleep in her beautiful open casket, smothered in stargazer lilies and delphiniums. Images from her life ran through my head. I felt the long scope of her experience on earth, and generally the crushing hardship of it, and generally her amusement, brightness and good cheer.

She made a lot of bad decisions in her life, married two alcoholics, got entangled with a third, and spent much of her life in bleakest most awful poverty. In some ways, her incurable optimism and her unbelievable ability to see through rose-colored glasses made her life a lot worse: you can’t fix a problem if you refuse to see it. And then again, a lot better. She was always fun.

Most of my memories of her stem from a year when I was about five and my mother and I lived with her down in rural Louisiana, near a small town called Tickfaw. It’s such a long story I can’t go into it much here. But suffice it to say that we were extremely poor. We had no running water and carried water from the lake in buckets. It rained all the time and the place was teaming with poisonous snakes and spiders. We had little to eat save eggs from the chickens, milk from the goats, and horrible beans. Nothing edible would grow as the soil was pure sand. My mother was indeed worried that we were getting scurvy and made us all drink pine needle tea as an available source of vitamin C. (We had plenty of pine needles!)

But despite all this my grandmother took good care of me that year. She made the eggs and goat milk into hot egg nog to feed me in the morning, and it was a way I could get something down without crying. She read me The Little Lame Prince at night and she and I slept in the same bed. When a rooster took a special dislike of me, and attacked me every time I stepped out of the house, she wrapped him in a towel and shook him, so I thus could carry my special towel as a talisman of protection. One thing that did grow there was flowers. A huge Cherokee rose smothered a tree taller than the house. A giant wisteria created a roof of flowers over the back yard. Azaleas seemed to be piled everywhere in bright pink heaps. She had a way of looking beyond the squalor around us and seeing only the flowers.

After the funeral on Saturday we had to pile in the car and drive three or four hours to the cemetery. She was buried near her second husband and their little daughter Cathy, who died as a child. On the drive we entertained ourselves with funny stories, including amorous clowns and hostile chain-smoking men in bunny suits. Never a lull in conversation, but everyone clamoring to tell another one.

Here are a few:

One time my aunts Judy and Barbara took Grandma Jane into New Orleans to the French Quarter to have some fun. Soon they were approached by a clown in full clown attire—big red shoes, rubber nose, rainbow wig, white face makeup with vertical lines through his eyes, giant pants, etc. But this clown was not coming to perform for them… no, this amorous clown was trying to hit on my aunt Barbara. (Barbara resembled Raquel Welch and this sort of thing was always happening to her.) He wanted Barbara to come with him and have a date. Barbara, as you might expect, was not interested. The ridiculous clown followed them around trying to persuade her. Grandma Jane pulled Judy aside. “Judy,” she said. “Don’t let Barbara go with him. If he abducts her, how will we ever identify him?”

*    *     *

One time one of Grandma Jane’s horses disappeared from her pasture. She suspected that the bad boys from the neighboring farm had taken the horse. She took down her shot gun and marched over their house. She banged on the door with the butt of her gun. The lady of the house answered the door nervously, saying “W—what do you want Jane?” And grandma said, “My horse is missing and I wondered if you’ve seen it.” “No, I haven’t seen it,” said the lady. “Um… what’s the gun for?” And grandma said, “Oh, just in case there’s a squirrel I want to shoot.” (The horse reappeared in the pasture an hour later.)

*     *    *

Now and then Grandma Jane would take her shotgun out into the yard and blast off a few rounds. She would say, “You have to remind people that you’re armed.”

*     *     *
At our house in Minnesota one time, there was a fire. I was maybe four years old. At some point during the night, I moved from my bed to my mother’s. My mother wasn’t there. A cat knocked a lamp on my bed and started to smolder. When I woke up at dawn the room was full of smoke. Grandma Jane came in and got me, carried me out. We didn’t have a phone and it was the dead of winter. We walked down to the neighbor’s and knocked on the door. But she didn’t want to be rude. She stood and chatted for a few minutes. Oh, how’s it going, how are you? And so on. Only after making pleasant conversation for a little while did she mention, “Oh, by the way, could I use your phone real quick? I want to call the fire department. Our house is on fire.”

*     *     *
In that fire my new doll was burned up and melted. I remember it lying in the snow charred and black, a loss which made me cry and cry. Perhaps this is why, a year or two later, she bought a doll for me in New Orleans. It was a fancy lady doll, porcelain, wearing a sort of an antebellum dress with a black velvet bodice and a big purple skirt.  I didn’t know about this doll until a few days ago. Barbara explained that she found it recently and asked Grandma Jane about it. “Oh, that’s for Catherine. She picked it out. She wanted it. I’ve been meaning to send it to her.”  That is, she’s been meaning to send it to me for at least 38 years and never quite gotten around to it, nor given up on the plan. I got the doll the other day. It really is quite the thing, and I’m sure if I had gotten it when I was five I would’ve just loved it. In fact, I love it now. It makes me smile, because it demonstrates both sides of her character—a generous considerate spirit, the best intentions, but painfully limited organizational skills or follow-through.

*    *    *

She loved animals, again to a fault. When the floor of her kitchen rotted through, and the bottom of her fridge rotted out, a possum moved in. She used the defunct fridge for a cupboard and every morning the possum greeted her. "Hello, possum!" she would say brightly.  

*    *    *

When a tiny orphaned bat appeared on her doorstep (something I've noticed never happened to any of the other grandmothers in the world), she picked it up and gently placed it in a little yogurt container lined with paper towels. Then she drove it way across Houston to a wild life rescue place where someone would take it. "I just wouldn't know what to feed it," she explained.

*    *    * 

Back in Tickfaw, she had a horrible motley selection of cur dogs, but fantasized that they were somehow good breeding stock. “We’ve got to preserve the bloodlines!” she would say. She wanted to breed a line of pure white German shepherds from these horrible mangy, flea-ridden dogs, and planned to have these lovely concrete kennels and dog runs one day. At her house in Houston even now, she has two such dogs. One young and timid, one old and incontinent, her tail bald from dermatitis. Grandma Jane was the patron saint of lost causes. Then by happenstance at her graveside, we were joined by a lovely version of this  exact kind of dog. A soft silky white dog came running over to us as the preacher was reading his solemn words. The closed casket was there, suspended over the bare root-filled hole in the ground where she will now spend eternity. The dog seemed a joyful spirit welcoming her to her new home. It tried to get in everyone’s lap, and made some of our party giggle at inappropriate moments. The dog’s love and exuberance lightened the mood a great deal and made it much easier to leave her there. “I’ve never seen this dog before,” said the Preacher. “It wasn’t here until y’all got here.” No, this was a special dog just for her. A silk white dog, healthy, frisky, just like she would’ve wanted. “It’s a good thing she isn’t here,” someone said. “She’d take this dog home with her.”  

Ellen Jane Schenck Chaffee Deason, rest in peace.

a few family photos online here:

http://obits.dignitymemorial.com/dignity-memorial/obituary.aspx?n=Ellen-Deason&lc=2091&pid=147104034&mid=4472058&locale=en-US

 

 

 
 

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